It's been sixteen months!
In April Jeff went into kidney failure and has been on dialysis. He's doing well so far. It was a very stressful time. We had just returned home from visiting our daughter in Indiana for five days when his kidneys shut down. At that same time, our water well pump blew out from a power surge while we were out of state, and we had to stay in a hotel for four days. If that wasn't enough...I had a terrible case of bronchitis, the worst in over four decades! And it was Easter weekend.
I had to reschedule several of my own doctor and scan appointments until May. I had been taken off of all cancer medication back in October 2024 because I had clear scans up until May, that is. As of May, there are lesions in the liver that we don't know what they are, so my oncologist decided to start me back on the cancer drug I had been on for over 7 years. Honestly, I'm questioning her reason for taking me off it in the first place! I mean, if a medicine is working, why stop taking it? I hate to think she discontinued this infusion for me because my insurance just so happened to stop covering me having it at her facility. That's highly suspicious though. Now I'm still waiting to get started back on the infusion, which has to be administered here at home because there are no dedicated infusion centers anywhere within 200 plus miles in my area! Only hospitals with infusion centers, which are no longer covered for this drug and several others.
So, I last seen my oncologist in early June at which time her office was supposed to schedule a couple more scans, which they did then an MRI showed even more liver lesions, but her office never contacted me even though I asked for her to call me to go over the latest scan. Then, at the same time her office accidently sent the order for my infusion to be given at a 2-and-a-half-hour drive away, to an infusion center that did not even accept my insurance!
Once they figured that mistake out, they sent my order to the correct place but had the wrong birthdate on my file! (I've been going there to this oncologist since 2019!)
So, more time passes without having the medicine I need to fight the cancer. This whole time I'm using a patient advocate through my insurance company to try to get things sorted out. None of this helped though, since now the place I need to go through to get the infusion at home, is still waiting for a final okay from another pharmacy supply corporation to release the drug for them to use, even though my insurance approved it already. So, it's been almost two whole months since I saw the oncologist, who never should have taken me off the medication ten months ago in the first place.
I could understand if it was my own idea to start infusion at home, but it is not. I don't have a choice.
Meanwhile, there could be cancer cells growing while we are wrapped up in red tape and my oncologist office has made one blunder after another. Oh, and my oncologist has completely ghosted me!
I'm really leaning on God here and trusting in His own timing.
Praying everyday
~Blessings & Love, and remember, we are...
~NEVERFORSAKEN~






